Born Twice: Voices of Spina Bifida - Paperback

by T. M. Berg (Author)

Why is this happening? Why him? Why us? I can't count the number of times those words echoed through my mind over the course of the summer of 2017. There is no more powerless feeling for a parent than being forced to watch as their child battles for his health & well being. At my wife's 20 week ultrasound, we expected to learn the sex of our second munchkin, but instead our world was crumbled. Words like Spina Bifida, Arnold Chiari Malformation, Myelomeningocele & Hydrocephalus destroyed the excitement we held and replaced it with more uncertainty than we knew existed. The next weeks & months were a whirlwind as we met with specialists and flew across the country so that my wife could undergo fetal surgery to close the opening in my son's back, as well as give him the best chance for a life of worthwhile quality. We would remain there for 4 months, away from our oldest son & our home. Our little Loxley Poet had our hearts from the beginning, so it was never a question as to if we would do all in our power to give him the best chance. It was only a matter of how and when? The amazing people in our lives, our friends & family, made sure we had everything we needed, support in all shapes and sizes. Our journey being what it was, I decided that I could look at it as a burden or as an opportunity. Instead of asking ourselves 'why, ' perhaps we should have been asking ourselves, 'why not?' So, thats what we did. We would handle this and we would thrive, because thats what families do. That's how we survive. That's how we live. This book is for my little warrior, all of his twice born brothers & sisters, as well as their selfless families willing to sacrifice some so that their children may have it all.

Author Biography

An avid reader and writer, Tyler M Berg enjoys crafting poetry and short stories. When not behind the computer screen, he can be found cheering on his beloved New York Yankees, Pittsburgh Penguins, Green Bay Packers, and Wisconsin Badgers. Born in Madison, Wisconsin, and raised nearby, Tyler credits Madison's culture and diversity as driving forces behind his lifelong love of creation with writing. He now makes his home in Mandan, North Dakota, with his wife, Kristen, and their two sons, Stellan Mitchell & Loxley Poet.